June 2013
Volume 54, Issue 15
Free
ARVO Annual Meeting Abstract  |   June 2013
The Sight Loss and Vision Priority Setting Partnership (SLV-PSP) - initial survey methods, respondents’ demographics and preliminary categorisation framework
Author Affiliations & Notes
  • Michael Bowen
    Research, College of Optometrists, London, United Kingdom
    Psychology, City University London, London, United Kingdom
  • Michele Acton
    Fight for Sight, London, United Kingdom
  • Dolores Conroy
    Fight for Sight, London, United Kingdom
  • Richard Wormald
    Cochrane Eyes and Vision Group, London School of Hygiene and Tropical Medicine, London, United Kingdom
    Biomedical Research Institute at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology, National Institute for Health Research, London, United Kingdom
  • Anita Lightstone
    VISION 2020 UK, London, United Kingdom
    Royal National Institute for Blind People (RNIB), London, United Kingdom
  • Katherine Cowan
    The James Lind Alliance, National Institute for Health Research (NIHR), London, United Kingdom
  • Catey Bunce
    Institute of Ophthalmology, University College London, London, United Kingdom
    Biomedical Research Institute at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology, National Institute for Health Research, London, United Kingdom
  • Mark Fenton
    UK Database of Uncertainties about the Effects of Treatments (UK DUETs), National Institute for Clinical Excellence (NICE), London, United Kingdom
  • Karen Bonstein
    Biomedical Research Institute at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology, National Institute for Health Research, London, United Kingdom
  • Footnotes
    Commercial Relationships Michael Bowen, The College of Optometrists (F); Michele Acton, None; Dolores Conroy, None; Richard Wormald, None; Anita Lightstone, RNIB (E); Katherine Cowan, None; Catey Bunce, None; Mark Fenton, None; Karen Bonstein, None
  • Footnotes
    Support None
Investigative Ophthalmology & Visual Science June 2013, Vol.54, 4390. doi:
  • Views
  • Share
  • Tools
    • Alerts
      ×
      This feature is available to authenticated users only.
      Sign In or Create an Account ×
    • Get Citation

      Michael Bowen, Michele Acton, Dolores Conroy, Richard Wormald, Anita Lightstone, Katherine Cowan, Catey Bunce, Mark Fenton, Karen Bonstein, ; The Sight Loss and Vision Priority Setting Partnership (SLV-PSP) - initial survey methods, respondents’ demographics and preliminary categorisation framework. Invest. Ophthalmol. Vis. Sci. 2013;54(15):4390.

      Download citation file:


      © ARVO (1962-2015); The Authors (2016-present)

      ×
  • Supplements
Abstract
 
Purpose
 

The SLV-PSP was established to identify unanswered questions about the prevention, diagnosis and treatment of sight loss and eye conditions that are most important to patients, partners/carers/relatives and eye health professionals in the UK. The exercise aims to identify research priorities which can then be used to inform the decisions of funding bodies and researchers and to enhance the case for additional research funding.

 
Methods
 

The process commenced with a survey open to patients, partners / carers / relatives and eye health professionals. People were asked to submit questions about the prevention, diagnosis and treatment of sight loss and eye conditions that they would like to see answered by research. The survey was widely disseminated by patient groups, professional bodies and through the media (radio and press) and was available to be completed on-line, by phone, by post and by alternative formats including Braille and audio. The survey also gathered demographic data about respondees.

 
Results
 

2,200 people responded to the survey generating 4,606 questions. Of these respondents, 65% were persons with sight loss or an eye condition. 17% identified themselves as healthcare professionals including primarily: ophthalmologists, optometrists, orthoptists, ophthalmic nurses, opticians and people working in social care and rehabilitation. The basic demographics of the respondents were as follows: Male 38.4%, Female 61.6%; mean age 63. Ethnicity: White (92.9%), Black (2.1%), Asian (2.8%), Mixed race (1.0%), Chinese (0.4%), Other (0.8%). The questions were categorised in 13 eye disease categories prior to further analysis.

 
Conclusions
 

The initial analysis of demographic data for respondents indicates that the sample is generally representative of the UK population. The number and diversity of conditions represented in responses was encouraging and initial review suggests that the distribution across the major conditions fits projected population incidence. Further analysis is underway.

 
Keywords: 465 clinical (human) or epidemiologic studies: systems/equipment/techniques  
×
×

This PDF is available to Subscribers Only

Sign in or purchase a subscription to access this content. ×

You must be signed into an individual account to use this feature.

×