May 2006
Volume 47, Issue 13
Free
ARVO Annual Meeting Abstract  |   May 2006
Development of a Graves Ophthalmopathy Health–Related Quality of Life Instrument: Identification of Content Area Using Focus Groups
Author Affiliations & Notes
  • E. Bradley
    Mayo, Rochester, MN
    Ophthalmology,
  • J.A. Sloan
    Mayo, Rochester, MN
    Biostatistics,
  • N.T. Iliff
    Wilmer Eye Institute, Johns Hopkins, Baltimore, MD
  • N.R. Miller
    Wilmer Eye Institute, Johns Hopkins, Baltimore, MD
  • S.K. West
    Wilmer Eye Institute, Johns Hopkins, Baltimore, MD
  • R.S. Bahn
    Mayo, Rochester, MN
    Medicine,
  • Footnotes
    Commercial Relationships  E. Bradley, None; J.A. Sloan, None; N.T. Iliff, None; N.R. Miller, None; S.K. West, None; R.S. Bahn, None.
  • Footnotes
    Support  NIH Grant EY 13844
Investigative Ophthalmology & Visual Science May 2006, Vol.47, 3467. doi:
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      E. Bradley, J.A. Sloan, N.T. Iliff, N.R. Miller, S.K. West, R.S. Bahn; Development of a Graves Ophthalmopathy Health–Related Quality of Life Instrument: Identification of Content Area Using Focus Groups . Invest. Ophthalmol. Vis. Sci. 2006;47(13):3467.

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      © ARVO (1962-2015); The Authors (2016-present)

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Abstract

Purpose: : To identify the content area for a Graves ophthalmopathy–specific health related quality of life instrument

Methods: : We conducted four focus groups in patients with mild to severe Graves ophthalmopathy. Focus groups were conducted by a trained moderator using a discussion guide as needed to facilitate discussion. Participant comments were audiotaped and transcribed verbatim. Recruitment was terminated after informational redundancy was obtained. Focus group transcripts were independently reviewed for content analysis by 3 reviewers, each of whom reviewed each transcript 3 times. Unique statements were abstracted from the focus group transcripts and organized by general health–related topic.

Results: : 18 subjects (16 female, 2 male) participated in focus groups, yielding 334 unique statements about the impact of Graves ophthalmopathy on health–related quality of life. Statements were grouped in 18 broad categories, including vision–related categories as well as social functioning, role functioning (work), self–perception, and sleep quality. The category for which the greatest number of unique statements was obtained was emotional functioning. Several of the concepts identified in the focus groups are not included in other vision–related quality of life instruments.

Conclusions: : Using focus groups, we have identified the content area for a disease–specific health related quality of life instrument for Graves’ ophthalmopathy.

Keywords: quality of life • orbit 
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