Purchase this article with an account.
Joshua R Ehrlich, Mario Zanolli, Rizwan Alvi, Steven Fox, Jenina Capasso, George Holliday, Alex Cohen, Barry Rovner, Alex V Levin; Parental Adjustment to Vision Loss in Pediatric Patients. Invest. Ophthalmol. Vis. Sci. 2015;56(7 ):2095.
Download citation file:
© ARVO (1962-2015); The Authors (2016-present)
To identify characteristics and coping strategies associated with parental adjustment to low vision in their children.
Parents of patients from the Wills Eye Hospital Pediatric Ophthalmology and Ocular Genetics service were asked to complete 3 validated survey instruments and a demographic questionnaire. Parents met inclusion criteria if they: did not have severe visual impairment themselves; had only one affected child; had a child under 7 years old with a bilateral untreatable visual acuity < 20/200 in the better seeing eye but no significant systemic disability. Data from the neuroticism section of the Neuroticism-Extroversion-Openness (NEO; McCrae RR, et al. NEO Inventories: Professional Manual.) survey were correlated with parental demographics and non-parametric statistical tests were employed.
To date, data have been collected from eight parents. The median age of respondents was 31-40 years and all identified as non-Hispanic Caucasian. Parents with a college degree had significantly higher levels of neuroticism than those with lower educational attainment (Mann Whitney U; p=0.02). There was no statistically significant difference in NEO scores between employed and unemployed parents (p=0.30) or comparing those with household annual incomes above and below $75,000 (p=0.20).
Past studies have shown associations between coping, adjustment and maladaptive traits among parents with chronically ill or disabled children (Streisand R, et al. Matern Child Health J, 2010; Drews C, et al. J AAPOS, 2003). In one study, parental neuroticism was associated with poor mental health among parents of children with pediatric neurosurgical conditions (Tifferet S. Psychol Health, 2010). Our data suggest that this maladaptive trait is associated with certain baseline characteristics among parents of visually impaired children. Additional data will be collected and analyzed to further describe the relationships between neuroticism, coping and parental adjustment in this population so that targeted interventions can be developed and employed.
This PDF is available to Subscribers Only