July 2018
Volume 59, Issue 9
Open Access
ARVO Annual Meeting Abstract  |   July 2018
The New Pediatric Vision Questionnaire (PVQ) for Assessing Health-Related Quality of Life and Functional Vision in Children with Eye Conditions
Author Affiliations & Notes
  • David A Leske
    Ophthalmology, Mayo Clinic, Rochester, Minnesota, United States
  • Sarah R Hatt
    Ophthalmology, Mayo Clinic, Rochester, Minnesota, United States
  • Suzanne M Wernimont
    Ophthalmology, Mayo Clinic, Rochester, Minnesota, United States
  • Yolanda S Castañeda
    Retina Foundation of the Southwest, Dallas, Texas, United States
  • Laura Liebermann
    Ophthalmology, Mayo Clinic, Rochester, Minnesota, United States
  • Christina S Cheng-Patel
    Retina Foundation of the Southwest, Dallas, Texas, United States
  • Eileen E Birch
    Retina Foundation of the Southwest, Dallas, Texas, United States
    Ophthalmology, University of Texas Southwestern Medical Center, Dallas, Texas, United States
  • Jonathan M Holmes
    Ophthalmology, Mayo Clinic, Rochester, Minnesota, United States
  • Footnotes
    Commercial Relationships   David Leske, None; Sarah Hatt, None; Suzanne Wernimont, None; Yolanda Castañeda, None; Laura Liebermann, None; Christina Cheng-Patel, None; Eileen Birch, None; Jonathan Holmes, None
  • Footnotes
    Support  NIH Grants EY018810 (JMH), EY024333 (JMH, PI & EEB, Co-I), and EY022313 (EEB), Research to Prevent Blindness (unrestricted grant to the Department of Ophthalmology, Mayo Clinic), and Mayo Foundation
Investigative Ophthalmology & Visual Science July 2018, Vol.59, 4148. doi:https://doi.org/
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      David A Leske, Sarah R Hatt, Suzanne M Wernimont, Yolanda S Castañeda, Laura Liebermann, Christina S Cheng-Patel, Eileen E Birch, Jonathan M Holmes; The New Pediatric Vision Questionnaire (PVQ) for Assessing Health-Related Quality of Life and Functional Vision in Children with Eye Conditions. Invest. Ophthalmol. Vis. Sci. 2018;59(9):4148. doi: https://doi.org/.

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      © ARVO (1962-2015); The Authors (2016-present)

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Abstract

Purpose : To develop new pediatric vision questionnaires designed to assess health-related quality of life (HRQOL) and functional vision.

Methods : Previously, patient-derived master questionnaires were created from specific concerns identified from child and parent interviews. In the present study, these Child (n=97 items), Proxy (n= 97 items) and Parent (n=69 items) master questionnaires were administered to children (5-18 years old; n=278) and parents (n=444) across 10 diagnostic categories (esotropia, exotropia, hypertropia, amblyopia, refractive error, anterior segment, CNS, nystagmus, orbital, retina/optic nerve) to derive shorter, Rasch-calibrated questionnaires. Exploratory factor analyses were performed (for children aged 0-4, 5-11 and 12-17 years) to identify unidimensional domains. Rasch analysis was performed on each domain by age group (0-4, 5-11 and 12-17 years), to reduce to no more than 10 items per domain, evaluating category utilization, differential item functioning, response ordering, local dependence, fit, and targeting.

Results : Five domains were identified for Child questionnaires (functional vision, bothered by eyes/vision, social, frustration/worry, glasses), 4 for Proxy 0-4 year olds (functional vision, bothered by eyes/vision, social, and glasses), and 6 for Proxy 5-11 and 12-17 year olds (functional vision, bothered by eyes/vision, social, frustration/worry, eye-care, and glasses). Five domains were identified for the Parent questionnaire (impact on parent/family, worry re: child’s eye condition, worry re: child’s self-perception and interactions, worry re: child’s visual function, and effect of treatment). Rasch analysis yielded a Child (5-11 year) questionnaire with 50 items across 5 domains, Child (12-17 year) questionnaire with 46 items across 5 domains, Proxy (0-4 year) questionnaire with 38 items across 4 domains, Proxy (5-11 year) questionnaire with 46 items across 6 domains, Proxy (12-17 year) questionnaire with 49 items across 6 domains, and a Parent questionnaire with 45 questions across 5 domains.

Conclusions : By following a rigorous process for questionnaire development, we have created the new patient-derived Pediatric Vision Questionnaire (PVQ) with age-appropriate Child, Proxy, and Parent versions for assessing HRQOL and functional vision in childhood eye conditions.

This is an abstract that was submitted for the 2018 ARVO Annual Meeting, held in Honolulu, Hawaii, April 29 - May 3, 2018.

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