June 2021
Volume 62, Issue 8
Open Access
ARVO Annual Meeting Abstract  |   June 2021
Usability and feasibility study of a vision-specific E-health intervention to reduce fatigue in adults with visual impairment.
Author Affiliations & Notes
  • Manon Veldman
    Ophthalmology, Amsterdam Universitair Medische Centra, Amsterdam, Netherlands
  • Hilde Petronella Adriana van der Aa
    Ophthalmology, Amsterdam Universitair Medische Centra, Amsterdam, Netherlands
  • Ger H.M.B. van Rens
    Ophthalmology, Amsterdam Universitair Medische Centra, Amsterdam, Netherlands
  • Ruth M A Van Nispen
    Ophthalmology, Amsterdam Universitair Medische Centra, Amsterdam, Netherlands
  • Footnotes
    Commercial Relationships   Manon Veldman, None; Hilde van der Aa, None; Ger H.M.B. van Rens, None; Ruth Van Nispen, MeiraGTx UK II Ltd (C)
  • Footnotes
    Support  Grant No 60-00635-98-219 ("ZonMw program Inzicht”)
Investigative Ophthalmology & Visual Science June 2021, Vol.62, 3595. doi:
  • Views
  • Share
  • Tools
    • Alerts
      ×
      This feature is available to authenticated users only.
      Sign In or Create an Account ×
    • Get Citation

      Manon Veldman, Hilde Petronella Adriana van der Aa, Ger H.M.B. van Rens, Ruth M A Van Nispen; Usability and feasibility study of a vision-specific E-health intervention to reduce fatigue in adults with visual impairment.. Invest. Ophthalmol. Vis. Sci. 2021;62(8):3595.

      Download citation file:


      © ARVO (1962-2015); The Authors (2016-present)

      ×
  • Supplements
Abstract

Purpose : Former research shows that 57% of the adults with visual impairment experience symptoms of severe fatigue. As there is no evidence based treatment, we developed a blended vision-specific cognitive behavioral and self-management based E-health intervention, called E-nergEYEze, to reduce fatigue in visually impaired adults. The intervention is (digitally) guided by social workers and digital features are explained by computer trainers. The purpose was to investigate the usability and feasibility regarding accessibility of the prototype.

Methods : E-nergEYEze has been developed based on evidence-based practice by a design team, who provided input for relevant themes and content based on new and existing modules. A usability study was conducted among 5 adults (mean age 54y, 80% male) with different eye conditions and severity of vision loss. Participants were asked to test E-nergEYEze while applying the think-aloud method, followed by a semi-structured interview. A thematic approach was used to analyze the data, after which the prototype was modified. A feasibility study was performed among 10 adults (mean age 50y, 60% male) with visual impairment and severe fatigue. The primary outcome was the Checklist Individual Strength subscale fatigue severity measured before and 3 months after baseline measurement.

Results : The prototype required substantive adjustments, lay-out changes and additional guidance by professionals. Participants of the usability study were interested to follow the intervention themselves. The feasibility study showed a significant reduction of severe fatigue (Wilcoxon Marched-Pairs test; z-score -2.652, p-value 0.008, SD 3.03-8.20). All participants recommended the intervention to others and gave E-nergEYEze a median score of 8.0 (range 7-10). One participant was lost to follow-up due to personal circumstances and two because of different expectations of the intervention.

Conclusions : Results of the E-nergEYEze prototype pilot study are promising in reducing fatigue in adults with visual impairment. As the design, severity of the visual impairment and skills on assistive technology determine the ability to access E-health for people with visual impairment, we carefully considered accessibility for users with visual impairment in the development of E-nergEYEze. Cost-effectiveness of E-nergEYEze is currently investigated in a randomized controlled trial.

This is a 2021 ARVO Annual Meeting abstract.

×
×

This PDF is available to Subscribers Only

Sign in or purchase a subscription to access this content. ×

You must be signed into an individual account to use this feature.

×