Investigative Ophthalmology & Visual Science Cover Image for Volume 65, Issue 7
June 2024
Volume 65, Issue 7
Open Access
ARVO Annual Meeting Abstract  |   June 2024
Investigating Elusive Genetic Causality in Inherited Retinal Degeneration Cases
Author Affiliations & Notes
  • Cherrell Price
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
    Morehouse School of Medicine, Atlanta, Georgia, United States
  • Riccardo Sangermano
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Emily Place
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Kaitlin O'Connell
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Rachel M Huckfeldt
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Jason Comander
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Eric A Pierce
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Kinga Maria Bujakowska
    Massachusetts Eye and Ear, Boston, Massachusetts, United States
  • Footnotes
    Commercial Relationships   Cherrell Price Research to Prevent Blindness, Code F (Financial Support); Riccardo Sangermano None; Emily Place None; Kaitlin O'Connell None; Rachel Huckfeldt None; Jason Comander None; Eric Pierce None; Kinga Bujakowska Research to prevent blindness, Code F (Financial Support)
  • Footnotes
    Support  RPB Medical Student Research Fellowship (2023)
Investigative Ophthalmology & Visual Science June 2024, Vol.65, 5290. doi:
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      Cherrell Price, Riccardo Sangermano, Emily Place, Kaitlin O'Connell, Rachel M Huckfeldt, Jason Comander, Eric A Pierce, Kinga Maria Bujakowska; Investigating Elusive Genetic Causality in Inherited Retinal Degeneration Cases. Invest. Ophthalmol. Vis. Sci. 2024;65(7):5290.

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      © ARVO (1962-2015); The Authors (2016-present)

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Abstract

Purpose : Advances in research and high-throughput sequencing technologies have transformed the process of uncovering causal genes for Mendelian disorders. Despite this, many causal variants are elusive, leaving 30-40% of inherited retinal degeneration (IRD) cases unsolved. For this reason, we reexamined our IRD cohort at Massachusetts Eye and Ear for previously overlooked solutions in newly discovered and known IRD genes.

Methods : Previously generated targeted, exome, and genome sequence data from over 3000 IRD cases were reanalyzed with updated bioinformatic pipelines (GATK and GATK-SV) to detect single nucleotide variants, small indels and structural variants. Mendelian Analysis Toolkit and an online platform (seqr.broadinstitute.org) were used to prioritize likely causal variants. The variants were confirmed by PCR and Sanger sequencing in probands and available family members. For selected cases, mRNA was extracted from peripheral blood, where RT-PCR and qPCR was performed to investigate the potential effect of variants on pre-mRNA splicing.

Results : We identified 5 rod-cone dystrophy cases carrying rare likely causal variants in the Pre-mRNA Processing Factor-31 (PRPF31) gene, that were originally overlooked because in the initial analysis the cases were considered as recessive, due to the incomplete penetrance present in one of the parents. Three variants were missense changes: c.1140C>G, p.Phe380Leu, c.757G>C, p.Gly253Arg, c.829A>C, p.Ser277Arg, and two variants were intronic: c.946-12 C>A, and c.856-2 A>G. The variants are absent in the gnomAD v4.0.0 variant database, are highly conserved, and predicted to be probably damaging by multiple in silico predictors, including the Evolutionary Model of Variant Effect (>0.9).

Conclusions : We present novel likely pathogenic missense and intronic variants in PRPF31. Our study shows a value of genetic data reanalysis to reduce missed diagnosis due to the analyst bias and to keep up with the constantly improving annotation sources, next generation sequencing processing pipelines and newly discovered IRD genes.

This abstract was presented at the 2024 ARVO Annual Meeting, held in Seattle, WA, May 5-9, 2024.

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